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In the last 10 years, an increasing number of adults and parents of children
with autism spectrum disorders have provided insight into the sensory challenges
they face. These candid reports have helped us validate the sensory differences
experienced by individuals with ASD. As researchers build a data base to support
sensory integration and continue to explore the neurological theories to prove
the reality of sensory integration, we can be confident that this anecdotal information
provides strong, valid and ever-increasing support.
"From as far back as I can remember I always hated
to be hugged. I wanted to experience the good feeling of being hugged,
but it was just too overwhelming. It was like a great all-engulfing
tidal wave of stimulation, and I reacted like a wild animal. Being
touched triggered flight; it flipped my circuit breaker. I was overloaded
and would have to escape, often by jerking away suddenly. When I was
little, loud noises were also a problem, often feeling like a dentist’s
drill hitting a nerve. They actually caused pain. I was scared to death
of balloons popping, because the sound was like an explosion in my
ear. Minor noises that most people can tune out drove me to distraction."
(p.62)
Thinking in pictures and other reports from my life with
autism, Temple Grandin, 1995
"I was unresponsive to bright lights, colors and
unusual sounds, didn’t anticipate being picked up by raising
my arms, and rocked a lot in my crib. It was as if others couldn’t
reach me. Picking me up was not easy as I was stiff and awkward to
hold. Although I often appeared deaf, I did respond to low sounds.
As an adult, I still like low-pitched sounds. As a toddler, I would
not kiss my father. The smell of coffee on his breath and the scratchiness
of his moustache were too much for me to bear. Haircuts were always
a major event. They hurt! It was impossible for me to communicate that
the pulling on my scalp was causing the discomfort. Having someone
else wash my hair was also a problem. Now that I am older and my nervous
system has matured, a haircut is no longer an issue." (p. 19)
Beyond the wall: Personal experiences with autism and
asperger syndrome, Stephen Shore, 2001
"I loved to chew crunchy things, even if they were
poisonous. When I finished my little tin foil table settings, I used
to chew them until they crackled their way into a tight, neat ball.
I shaved the sand from Emory boards with my front teeth. As much as
I loved to chew scratchy and gritty textures, I often found it impossible
even to touch some objects. I hated stiff things, satiny things, scratchy
things, things that fit me too tightly. I also found many noises and
bright lights nearly impossible to bear. High frequencies and brassy,
tin sounds clawed my nerves. Together, the sharp sounds and the bright
lights were more than enough to overload my senses. My head would feel
tight, my stomach would churn and my pulse would run my heart ragged
until I found a safety zone." (p. 25)
Pretending to be normal: Living with apserger’s
syndrome,
Liane Holliday Willey, 1999
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